She was awake for almost half of the day! I enjoyed having her present with me again. Her presence included a question about when we would hear the verdict. One of her dreams, the one to which she woke crying because she had been beaten by a police officer, included a follow up in which we were to go to court. She was referring to that dream, still confused with reality. It is what I suspect is part of a series of living dreams that have collected bits and pieces from Law and Order episodes and thrown them into a new configuration.
She was lucid enough to at least hear my suggestion that she is free to take that off her list of worries since it never actually happened and was only a dream. So far, the hyper hallucinating has not returned. It certainly seems to be on the horizon. I thought the hallucinations might fire up last night, but they didn’t. Since she was awake more of today and spoke of the dreams as if they were still a reality, it seems more likely that the return is near.
The last four days have provided a chance for Mary Ann and I to reconnect a bit. It is very hard to connect with one another when she is constantly in a world of delusions and hallucinations. The last few days we have been able to express a gentle warmth with one another, a lingering hug when moving her from one chair to another, a soft kiss while in front of the fridge getting ready to pick out something for lunch. I will miss that when the hallucnations return. I have a quiet hope that by reducing the Seroquel, the intensity and frequency of the hallucinations might diminish a bit, allowing a little space in between to reconnect. I hesitate to hope since so often that for which I hope gets lost in the next crisis.
We did get out in the car today. Mary Ann ate well at breakfast, stayed up for a couple more hours until Hospice Aide Sonya came to give her a shower and do her hair. Mary Ann was hungry for lunch as soon as that was done. She ate a good lunch with a half sandwich, chips, Pepsi, and Concrete from Sheridan’s that had ended up in the freezer one evening a couple of days ago. After lunch, I got her into the car and we headed out for some errands. She stayed in the car, while I ran in and out of three or four places. It was not long before she was dozing in the car, but at least we were out.
She slept for a couple of hours when we got back, then she got up and ate a small supper. This seems to me to be the first day in many in which she has eaten three meals, even if the last one was small.
She is back in bed, having taken her pills. She slept reasonably well last night. My expectation of a difficult night has increased tonight based on the increase in her activity today and the questions about the dream she has mixed with reality. She also seems restless at the moment.
The good news is that if it is a bad night, Monday evening’s Volunteer Tamara offered to come for a time in the mid-morning tomorrow and the afternoon next Tuesday to provide some nap time options for me if needed. I was very obviously suffering from lack of sleep last Monday after the 8 day run of intense hallucinations at night as well as parts of the days.
I made a belated phone call to my Brother and Sister-in-Law who had a combined surprise birthday party in conjuction with the Confirmation of one of their Grandsons. One turned 80 and the other 81. Happily, they are both in good health and as feisty as ever, and they certainly are a feisty pair. They have a genuine woodland and pond in their back yard measured in acres rather than feet. Their garden is huge. The bee hives provide them with honey. When it is cold, wood cut from their and their Son’s property warms them in the wood burning stove. Two of their Children and three Grandchildren live moments away.
I was disappointed not to be able to travel the ten hours to the surprise party. My four Brothers and Sisters were together at the party. Three had come a five hour drive to attend. As a Pastor, we have lived at various places, none close to our families of origin. All five of us have discovered more interest in getting together in recent years, but Mary Ann’s and my circumstances have not allowed us to join them very often. We have a great time when we are together.
For now, it is my intention to try to get to bed earlier tonight in anticipation of what might come during the night. I suspect the respite is coming to an end.
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May 28, 2010 at 10:48 pm
Pr Pete, I thought of you today. The girls and I went to the library to invest some needed reading time. The art gallery has an exhibit on water and wetlands in Kansas. They had sounds of water and birds and even a small “fake” wetlands. I kept thinking of you and now I see why this gives you such peace. Thank you for always sharing your life, good or bad. It helps us as much as it helps you. Please know we continue to pray for you and Mary Ann. May you both have a peaceful night.