Well, it wasn’t wild and crazy partying, but given our circumstances, it was okay. After sleeping well last night, Mary Ann got up some time after 10am. For some reason, when we were finishing with her pills and food (she was already dressed). I remembered a couple of music CD’s we had gotten when Occupational Therapist Karen was working with Mary Ann using rhythmic movements in her therapy. It is a CD of big band music from the thirties and forties. Even though we were not born until the early 1940’s, the music was part of our very early history.
I put the CD’s on and invited Mary Ann to dance. As I have admitted before, I don’t dance. I can, however, sway. She laughed at me, as usual. We stood for a minute or two of swaying/dancing before she fainted from the Orthostatic Hypotension (drop in blood pressure when standing) that has come from a combination of medicines and a compromised Autonomic Nervous System (due to both the Parkinson’s and the Parkinson’s Dementia).
Today did not include the option of going out anywhere since Mary Ann fainted every time she stood up — that is every time! There was some intestinal activity, which always included a cluster of fainting spells. I just hung close to her at all times. If she just stood up in front of her chair to stretch her legs, she fell back into the chair and was out for a time.
In spite of that, the day went better than I thought it might. She was awake most of the time. She did not seem to be hallucinating very much at all. She got good, long phone calls from both of the kids. Daughter Lisa’s crew sang happy birthday, and both of the girls (5 and 7) had stories to tell about what was going on with them. Mary Ann was able to respond a little to both Son Micah and Lisa.
My Sister, Gayle, phoned and sang happy birthday also, so Mary Ann got lots of attention. There have been lots and lots of cards. She now has a bank envelop with the words “for ice cream only” filled with a total of $60 in cash. The bank teller wrote that note on the envelop in accord with the note on a $50 check. I believe there will also be some Graeter’s ice cream from Louisville delivered when Lisa and her crew come to visit in June. That has to rank as one of the best in the world of ice cream.
Don and Edie came over again to deliver some flowers and visit for a few minutes. Volunteer Coordinator Mary had brought over a bouquet yesterday. Friend Jeanne called, widhed Mary Ann happy birthday, and arranged for a visit on Monday.
After eating a slice of Glory Days Pizza for lunch (left over), we each had a piece of rhubarb pie (Volunteer Coordinator Mary made it a couple of days ago using Mary Ann’s recipe). Mary Ann’s piece, of course, had a couple of scoops of ice cream on it.
Mary Ann dozed for a while with her head down on the little table in front of her, but was awake most of the time. The big band music was on for much of the time. Later she lucked out and found a couple of episodes of “House,” followed by an NCIS marathon. We went through birthday cards. She was not as alert yesterday when I read some to her, so we went through them again. She was much more alert today.
The wildlife was entertaining to both of us at various times. Three very colorful Baltimore orioles were in and out of view for much of the day. It was rainy outside, but only occasional sprinkles.
After some more leftovers for supper, we each had a big piece of the three layer melt-in-your mouth chocolate cake frosted with thick layers of whipped cream and coconut frosting. I made a pot of Sumatra Badak Rhino Blue Tawar coffee from PT’s. It is a moderately dark roast that fit my taste perfectly. Mary Ann is not much for the strong coffees that I enjoy. She prefers Pepsi.
Today, I included the additional half tablet of Seroquel in the morning cluster of pills. The Neurologist is suggesting we try that addition to see if it might help reduce the hallucinations. It can cause her to sleep more of the time and increase the fainting, but the fainting had already started before she took her meds and long before the medicine could have gotten into her blood stream. She didn’t sleep as much as usual during the day today. It is way too soon to draw any conclusions on the effect the increase in Seroquel might have. Today she seemed to have minimal trouble with hallucinations and more fainting, but the medicine may have had no part in those characteristics of the day.
Mary Ann slept well and for a long time each of the last two nights. I also have had two full nights of sleep. I have absolutely no clue whether tonight will be a night of sleep or a night of hallucinations/delusions/dreams mixed with reality, up and down with no sleep for either of us. I do know which I would prefer.
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May 16, 2010 at 12:43 pm
Happy Belated Birthday, Aunt Mary Ann!
With love,
Diana