I have asked her three times with fairly long intervalsin between to let me help her in some way. She chose the chicken salad for lunch, along with the usual Pepsi and Fritos. She just could not negotiate the fork. She was putting the handle in her mouth. When I offered to help she said that she needed to do it for herself.
I got from the fridge the other half of a sandwich she had eaten on Monday. I microwaved it just to warm it a bit and soften the cheese. I put that on her plate with the chips and chicken salad in hopes that she might use her hands to eat it since the fork wasn’t doing well.
It was probably fifteen minutes of her getting nothing into her mouth, even the Pepsi, (she had also refused to let me get that to her mouth so that she could get some through the straw) before I offered again. She still refused.
Just before eating I weighed her. She had gotten as high as 135 pounds a couple of years or so ago — then 125. More recently she has been under 120. The last time I weighed her here is was 117. This time it was 113. She needs to eat!!!
When I came back to start this post, she was beginning to get some of the sandwich eaten, using the fork to pick it up. I just went back to check again, and the Sinamet must have kicked in since she is now getting some of the chicken salad to her mouth. That is a very good thing.
While, of course, I love ice cream and will find any excuse to head to Baskin & Robbins to get some, I also do so to get as many calories as possible into Mary Ann. While she may run out of patience trying to eat chicken salad and a deli meat sandwich, she will manage to get ice cream eaten, even if it demands letting me help.
She ended up eating about four bites of all the food on her plate. She did let me feed her a raisin cookie I brought home from the coffee shop for her yesterday.
It is very difficult to watch Mary Ann try to eat on her own when things are not going well. One reason she was having so much trouble this afternoon is that her eyes were shut for most of the time she was trying to eat. She was in eyes slammed shut mode, along with the return of hallucinations.
Last night did turn out to be one that included a number of times up. Shortly after going to bed she had another divorce dream. When I came in to check on her, she was sort of surprised to see me. Hopefully, the fact that I am with her 24/7, those dreams will begin to subside. She is fine when she is not in hallucination mode. In fact, last night, she did say it was a nightmare she had had. At least she seemed very quickly to be aware that it was not real when I sat down next to her.
She got up early this morning given how often we had been up during the night (her usual pattern on those nights). It was not long after breakfast that she needed to lie down again. She slept until about 2pm. That is when we began the lunch process that went so badly.
She sat for a while after lunch, some of the time in her head in her lap position. After a while, around 4:15pm, she just got up and headed into the bedroom (I caught up with her quickly and let her lead us to where she was going). She wanted to change her jeans for pajama bottoms.
After that change, I offered her some vanilla ice cream from the freezer. She let me help her with a good sized bowl Shortly thereafter she went in to lie down and watch television. She was very restless for a while, with lots of hallucinations, this time interspersed with moments of lucidity.
It is 9pm. She has had her pills and has been fairly quiet for a while. I would not presume to predict how the night will go.
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February 20, 2010 at 3:22 am
Would the product “Ensure” help her? I remember my parents drinking it to add calories to whatever they ate for the day, when they could not eat much. I remember having it in the refrigerator. They seemed to like it cold rather than room temperature. Just a thought
February 21, 2010 at 2:13 am
I mentioned Ensure to Mary Ann the other day. We tried it a couple of years ago. It tasted chalky to both of us. Mary Ann has a pretty narrow range of tastes she will tolerate. It may taste better now. I posted a request for suggestions for good tasting supplements in the online Caregiver Spouses group. A couple of them suggested Boost (chocolate especially). I got some Boost and some ice cream to mix in. We will see how it goes.
February 21, 2010 at 4:29 am
Can that liquid be substituted for the milk on pudding? My folks liked the walmart brand. And I know at our local hospital that you can contact the dietary dept and get the Ensure by the case and save some money. I would go to the store and have $25 in cans. I also have heard Boost is good. What about the liquid yogart??
February 20, 2010 at 12:40 pm
That’s a good suggestion. Also anything with the consistency of pudding. If you haven’t already, you could switch her morning yogurt to a full-fat one. They make some good ones for infants.
February 21, 2010 at 2:31 am
Ensure tastes chalky to both Mom and me (tried it a few years ago). The online group suggested Boost. I got some Chocolate and Strawberry and a half gallon of full fat ice cream to mix in. I suggested to Mom when we were at the store that we change the yogurt to a larger size. She didn’t want to change. You know how narrow the range of acceptable to Mom is. I may just sneak a different one in some time and see if she likes it. I didn’t check the foods for infants. I’ll check that next time we are at the store.
Dad