The toast was just out of the toaster with a little Mayo on it. The Provolone and smoked turkey had come from the fridge. The bacon was warm from having just been cooked to just the right crispness in the microwave. The sandwich was still sitting in front of her, untouched, after I had made some more bacon and toasted a slice of bread, topped it with butter, peanut butter and jelly for my own supper.
I asked what was wrong — why she had not touched the sandwich sitting in front of her. She said it was frozen. There was another time not too long ago when she said the same thing about a sandwich I had made for her. Of course I did the opposite of what should be done when hallucinations mix into reality. I complained in frustration as I took it to the microwave to heat it up for her. I complained that I have no power to fix what isn’t there — it was impossible for it to be frozen. When I asked what led her to believe it was frozen, she said there was ice on it — again, impossible.
While I should be past letting these things cause frustration, it is true that it is impossible to fix what doesn’t exist. It is already using up all my coping skills dealing with what is real. Dealing with the challenges all day and all night (sometimes) creates a very thin veneer of equilibrium. My frustration came and went in moments, and Mary Ann ate about a quarter of the sandwich — followed by a cookie (no wonder she stays so thin even with trips out for ice cream).
Today also included lots of trips caused by some intestinal activity — not always making it in time. Gratefully, the disposable underwear makes that occasional incontinence easier to handle. This was a day the role of waste management was exercised.
One of the complications was that the esophageal spasms flaired up today. When they come, there is much discomfort that lasts for hours. This attack lasted most of the day. I have been to the Gastroenterologist and been tested in every way known to humankind. There is pretty much no real explanation and no treatment.
One of the routine challenges of any Caregiver is the need to continue to deal with the needs of another, no matter how small those needs may be, even when the Caregiver is sick and in pain. It just comes with the territory.
Since last night was not a particularly good one in terms of uninterrupted sleep, we were both tired. As a result, Mary Ann napped for a long time, and I vegetated, trying to ride out the spasms.
Mary Ann is in bed now and seems to be sleeping. I will, hopefully, not be far behind. I am sure she will need one or two snacks during the night since there was little consumption of food today.
Two updates: No raccoon visitation last night either. We will see what tonight brings. The other update is that I have managed to avoid any exercise walking the last two days. Tomorrow is another day.
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