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	<title>Comments for The Caregiver Calling</title>
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	<description>Called to care for loved ones in need</description>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Gail</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2194</link>
		<dc:creator><![CDATA[Gail]]></dc:creator>
		<pubDate>Wed, 02 May 2012 23:34:09 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2194</guid>
		<description><![CDATA[Hi Donald , I also get the hot flashes I&#039;m 55 and sometimes I do not sweat but the feeling of being on fire is real. I don&#039;t get them all the time and sometimes they are 2 to 3 times a day then not again for a couple of days. I get them a lot at night when trying to sleep.  So far I am only right sided PD and have had it for 12 years. Good luck with your mom! Hope she feels better and they slow up for her. I feel her pain.]]></description>
		<content:encoded><![CDATA[<p>Hi Donald , I also get the hot flashes I&#8217;m 55 and sometimes I do not sweat but the feeling of being on fire is real. I don&#8217;t get them all the time and sometimes they are 2 to 3 times a day then not again for a couple of days. I get them a lot at night when trying to sleep.  So far I am only right sided PD and have had it for 12 years. Good luck with your mom! Hope she feels better and they slow up for her. I feel her pain.</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Gail</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2193</link>
		<dc:creator><![CDATA[Gail]]></dc:creator>
		<pubDate>Wed, 02 May 2012 23:23:20 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2193</guid>
		<description><![CDATA[I am also on azilect and have had PD for 12 years. I have just started getting hot flashes about 6 or 8 months ago mostly at night. When I went to my neuro last visit she asked me about having hot flashes and at the time I saw her I was not having them. I left there saying hot flashes I already went thru menopause. Little did I know they are here again but a lot more intense.  By the way I am 55 years old. Thanks for the info it&#039;s nice to know your not alone.]]></description>
		<content:encoded><![CDATA[<p>I am also on azilect and have had PD for 12 years. I have just started getting hot flashes about 6 or 8 months ago mostly at night. When I went to my neuro last visit she asked me about having hot flashes and at the time I saw her I was not having them. I left there saying hot flashes I already went thru menopause. Little did I know they are here again but a lot more intense.  By the way I am 55 years old. Thanks for the info it&#8217;s nice to know your not alone.</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Donald</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2095</link>
		<dc:creator><![CDATA[Donald]]></dc:creator>
		<pubDate>Sun, 01 Apr 2012 06:23:21 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2095</guid>
		<description><![CDATA[Thanks Peter, i read your message three times. Thanks for the disclaimer too. Nicely summed up.
Ok, i just want to be clear that the temperature issue is not physiological, there is no rise, or fall in body temperature. Her body temp is stable. Neither is she actually sweating for real. It&#039;s purely that she feels that way. The hot sweaty feeling she is having is occurring only in her brain, which is has me thinking it could be an advance or an indicator of something. 

Yes thanks, on the advocate comment. I&#039;ve in this role for about 10 years now,- been thru fractures at emerg, and about 5 or 6 trips by ambulance to emerg, times when i thought she was experiencing a bad TIA, it&#039;s a judgement call, one you must make.  Then there were the urinary tract infections. They produce dementia effect due to toxic blood.  Then the visits to the specialists and the labs. It&#039;s a learning curve where you must pay CLOSE attention, think independently, ask questions, and reason. I know you also understand that well.   She was being way over medicated on BP meds (by 200%), that and probably to some degree the Lipitor, were actually causing the episodes that mimicked a TIA, (BP 200+/90) quite ironic.  I found out it helps to see the right specialists. Mostly one must wake up to the responsibility required to understand what is actually going on (reality). No one else truly can or will, only those that are with the person, caring, watching them objectively, and observing day to day. (we do a lot of BP readings for example, when symptoms escalate)

Lastly, thanks for your reply, its was very thoughtful and points me in the right direction of observation and due diligence.
Cheers!
Donald]]></description>
		<content:encoded><![CDATA[<p>Thanks Peter, i read your message three times. Thanks for the disclaimer too. Nicely summed up.<br />
Ok, i just want to be clear that the temperature issue is not physiological, there is no rise, or fall in body temperature. Her body temp is stable. Neither is she actually sweating for real. It&#8217;s purely that she feels that way. The hot sweaty feeling she is having is occurring only in her brain, which is has me thinking it could be an advance or an indicator of something. </p>
<p>Yes thanks, on the advocate comment. I&#8217;ve in this role for about 10 years now,- been thru fractures at emerg, and about 5 or 6 trips by ambulance to emerg, times when i thought she was experiencing a bad TIA, it&#8217;s a judgement call, one you must make.  Then there were the urinary tract infections. They produce dementia effect due to toxic blood.  Then the visits to the specialists and the labs. It&#8217;s a learning curve where you must pay CLOSE attention, think independently, ask questions, and reason. I know you also understand that well.   She was being way over medicated on BP meds (by 200%), that and probably to some degree the Lipitor, were actually causing the episodes that mimicked a TIA, (BP 200+/90) quite ironic.  I found out it helps to see the right specialists. Mostly one must wake up to the responsibility required to understand what is actually going on (reality). No one else truly can or will, only those that are with the person, caring, watching them objectively, and observing day to day. (we do a lot of BP readings for example, when symptoms escalate)</p>
<p>Lastly, thanks for your reply, its was very thoughtful and points me in the right direction of observation and due diligence.<br />
Cheers!<br />
Donald</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by PeterT</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2093</link>
		<dc:creator><![CDATA[PeterT]]></dc:creator>
		<pubDate>Sun, 01 Apr 2012 05:38:44 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2093</guid>
		<description><![CDATA[Donald, I need to begin with a disclaimer.  Remember, I am a Caregiver very familiar with Parkinson&#039;s and Lewy Body Dementia from living with someone who had Parkinson&#039;s for 23,5 years and Parkinson&#039;s Disease Dementia (a form of Lewy Body Dementia) during the last few of those years. I am not a Neurologist or a Medical Doctor of any sort.  I learned a great deal by attending workshops at KU Med Center - a national center for Movement Disorders.  Talking with a large group of others dealing with the same issues revealed much about living with the disease and side effects of meds.  Please do not substitute this blog and comments for time spent with the professionals.  
I needed to be sure to make that clear.  One Neurologist specializing in Parkinson&#039;s wrote that rapid changing symptoms usually do not come with Parkinson&#039;s but point to some other cause.  That would suggest looking to a different cause for the temperature problems.  At the same time, my observation was that symptoms did appear to move rapidly at times.  I concluded (our Neurologist agreed) that sometimes progression moved slowly for a time but at some point reached a threshold and appeared to move quickly when they crossed that threshold and became apparent.  That would allow for the Parkinson&#039;s to be producing the side effect.  
It would seem to me to be appropriate to be assertive in checking on other possible causes of that symptom as if your Mom was not 97 but 57.  Thyroid issues can effect body temperature.  I would tend to agree with your Geriatrician&#039;s recommendation that Parkinson&#039;s meds be avoided if possible.  The basic med, brand named Sinamet, can worsen dementia and after a while (usually years) produce dyskinetic movements (look at Michael J. Fox) that are in themselves debilitating.  Mary Ann experienced those consequences. 
Those are some first thoughts.  Your Mom is fortunate to have you as her Advocate.  A number of times when Mary Ann&#039;s circumstances were especially complex, I wrote a thorough description (including details such as the ones you gave in your comment) followed by my questions and faxed it to the doctor a few days before the appt.  Even if the doctor doesn&#039;t read it until moments before entering the examination room it provides better communication.]]></description>
		<content:encoded><![CDATA[<p>Donald, I need to begin with a disclaimer.  Remember, I am a Caregiver very familiar with Parkinson&#8217;s and Lewy Body Dementia from living with someone who had Parkinson&#8217;s for 23,5 years and Parkinson&#8217;s Disease Dementia (a form of Lewy Body Dementia) during the last few of those years. I am not a Neurologist or a Medical Doctor of any sort.  I learned a great deal by attending workshops at KU Med Center &#8211; a national center for Movement Disorders.  Talking with a large group of others dealing with the same issues revealed much about living with the disease and side effects of meds.  Please do not substitute this blog and comments for time spent with the professionals.<br />
I needed to be sure to make that clear.  One Neurologist specializing in Parkinson&#8217;s wrote that rapid changing symptoms usually do not come with Parkinson&#8217;s but point to some other cause.  That would suggest looking to a different cause for the temperature problems.  At the same time, my observation was that symptoms did appear to move rapidly at times.  I concluded (our Neurologist agreed) that sometimes progression moved slowly for a time but at some point reached a threshold and appeared to move quickly when they crossed that threshold and became apparent.  That would allow for the Parkinson&#8217;s to be producing the side effect.<br />
It would seem to me to be appropriate to be assertive in checking on other possible causes of that symptom as if your Mom was not 97 but 57.  Thyroid issues can effect body temperature.  I would tend to agree with your Geriatrician&#8217;s recommendation that Parkinson&#8217;s meds be avoided if possible.  The basic med, brand named Sinamet, can worsen dementia and after a while (usually years) produce dyskinetic movements (look at Michael J. Fox) that are in themselves debilitating.  Mary Ann experienced those consequences.<br />
Those are some first thoughts.  Your Mom is fortunate to have you as her Advocate.  A number of times when Mary Ann&#8217;s circumstances were especially complex, I wrote a thorough description (including details such as the ones you gave in your comment) followed by my questions and faxed it to the doctor a few days before the appt.  Even if the doctor doesn&#8217;t read it until moments before entering the examination room it provides better communication.</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Donald</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2091</link>
		<dc:creator><![CDATA[Donald]]></dc:creator>
		<pubDate>Sun, 01 Apr 2012 04:03:59 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2091</guid>
		<description><![CDATA[Typo above = geriatrician]]></description>
		<content:encoded><![CDATA[<p>Typo above = geriatrician</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Donald</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2089</link>
		<dc:creator><![CDATA[Donald]]></dc:creator>
		<pubDate>Sun, 01 Apr 2012 03:55:46 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2089</guid>
		<description><![CDATA[Hello all, my mom 97, has Parkinson&#039;s. i just found this blog through searching the term, &#039;Parkinson&#039;s hot and sweaty&#039;. I&#039;ve read through the comments and wanted to add some info on mom before asking questions. Her background: mom was diagnosed last fall officially, but she&#039;s had the trembling right hand and arm for a year or more, so it&#039;s likely the disease started some time ago, maybe 3 years.  She&#039;s otherwise pretty healthy, and lives comfortably in her home, accompanied and cared for by her youngest son (moi).  She takes light prescription drugs for BP and also the blood thinner Plavex. Thankfully the new specialist took her off lipitor, because some (many and frequent) episodes that seemed like TIA&#039;s magically went away at the same time.  She is also taking vitamin supplements, C, D, and calcium, and so on.  Her geriatricianon  on her last meeting said she was in such good health at 97 that she could be the poster girl for his office wall. So that&#039;s mom. (We are superbly blessed) 

The geriatricianon did not prescribe any drug therapy  for the illness saying that side effects from the treatment in her case could turn out to be worse than the condition itself. He suggested that the timeline for Parkinson&#039;s being a mortal threat was far out in years.

My question is about the hot flashes you folks are experiencing. Do they come in waves?  Mom has been experiencing this off and on. Sometimes a day here and there, then nothing for a month or two. This last week it has been really hitting hard, occurring every day for eight days. Not usually in the morning, but in the afternoon and on into the evening. She feels burning up and feels &#039;sweaty&#039;  but is not actually perspiring. My sister, listening to mom, says it sounds similar to someone describing the effects  of menopause. 

 I just took mom&#039;s temp at her insistence, even though i knew the outcome would be normal. It was 36C (96.8F). She was very stressed, and i could hear the stress in her voice and see it in her face. She is burning up half the time, and feeling sweaty, and then has the chills shortly thereafter.  It&#039;s very genuine.  She is uncomfortable in her own skin and this is accompanied by some slight dementia, such as short term memory loss and a touch of confusion.  The phenomena  seems  to me, neurological, as if something is playing havoc with her senses. Mom is never articulate at explaining  or verbalising how she feels in plain or clinical terms, and furthermore, she doesn&#039;t like to recognize that she has Parkinson&#039;s in the first place,  so it&#039;s a little hard to discuss it openly.  

Does this hot flash symptom get worse? or does it fade and return. Or is it completely unpredictable? Are there any triggers anyone is guessing at? - as none it seems are known. Is there a wave length? My gut feeling says it&#039;s an indicator of Parkinson&#039;s advancing. Just some questions i have.  
Thanks in advance for any thoughts you may have.]]></description>
		<content:encoded><![CDATA[<p>Hello all, my mom 97, has Parkinson&#8217;s. i just found this blog through searching the term, &#8216;Parkinson&#8217;s hot and sweaty&#8217;. I&#8217;ve read through the comments and wanted to add some info on mom before asking questions. Her background: mom was diagnosed last fall officially, but she&#8217;s had the trembling right hand and arm for a year or more, so it&#8217;s likely the disease started some time ago, maybe 3 years.  She&#8217;s otherwise pretty healthy, and lives comfortably in her home, accompanied and cared for by her youngest son (moi).  She takes light prescription drugs for BP and also the blood thinner Plavex. Thankfully the new specialist took her off lipitor, because some (many and frequent) episodes that seemed like TIA&#8217;s magically went away at the same time.  She is also taking vitamin supplements, C, D, and calcium, and so on.  Her geriatricianon  on her last meeting said she was in such good health at 97 that she could be the poster girl for his office wall. So that&#8217;s mom. (We are superbly blessed) </p>
<p>The geriatricianon did not prescribe any drug therapy  for the illness saying that side effects from the treatment in her case could turn out to be worse than the condition itself. He suggested that the timeline for Parkinson&#8217;s being a mortal threat was far out in years.</p>
<p>My question is about the hot flashes you folks are experiencing. Do they come in waves?  Mom has been experiencing this off and on. Sometimes a day here and there, then nothing for a month or two. This last week it has been really hitting hard, occurring every day for eight days. Not usually in the morning, but in the afternoon and on into the evening. She feels burning up and feels &#8216;sweaty&#8217;  but is not actually perspiring. My sister, listening to mom, says it sounds similar to someone describing the effects  of menopause. </p>
<p> I just took mom&#8217;s temp at her insistence, even though i knew the outcome would be normal. It was 36C (96.8F). She was very stressed, and i could hear the stress in her voice and see it in her face. She is burning up half the time, and feeling sweaty, and then has the chills shortly thereafter.  It&#8217;s very genuine.  She is uncomfortable in her own skin and this is accompanied by some slight dementia, such as short term memory loss and a touch of confusion.  The phenomena  seems  to me, neurological, as if something is playing havoc with her senses. Mom is never articulate at explaining  or verbalising how she feels in plain or clinical terms, and furthermore, she doesn&#8217;t like to recognize that she has Parkinson&#8217;s in the first place,  so it&#8217;s a little hard to discuss it openly.  </p>
<p>Does this hot flash symptom get worse? or does it fade and return. Or is it completely unpredictable? Are there any triggers anyone is guessing at? &#8211; as none it seems are known. Is there a wave length? My gut feeling says it&#8217;s an indicator of Parkinson&#8217;s advancing. Just some questions i have.<br />
Thanks in advance for any thoughts you may have.</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by PeterT</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2087</link>
		<dc:creator><![CDATA[PeterT]]></dc:creator>
		<pubDate>Sat, 31 Mar 2012 16:37:57 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2087</guid>
		<description><![CDATA[]]></description>
		<content:encoded><![CDATA[<p>When Mary Ann was in the very latest stages of her Parkinson&#8217;s, we were able to  cut back on the Sinamet.  That seemed to help.  While it was probably a  mysterious combination of problems (as disease progressed) with the Autonomic  Nervous System (Parasympathetic) that regulates temperature and the medications,  the Sinamet (Carbidopa/Levodopa) seemed to be a triggering mechanism.  Since  Mary Ann moved to the Parkinson&#8217;s Dementia stage (not all with Parkinson&#8217;s  experience that stage) I joined a Spouses of those with Lewy Body Dementia  online group.  Those folks provided the most help by at least offering a place  to talk about this with folks who understood what was going on.   </p>
<p>It was not until we were using a national Center for Parkinson&#8217;s that we came  upon a Neurologist who actually knew enough to be of significant help to Mary  Ann.  Even then it took very many years before I heard mention of sweats being  non-motor symptom of Parkinson&#8217;s &#8212; and the recognition that the non-motor  symptoms could sometimes be even more debilitating than the motor symptoms. </p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Mare</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2085</link>
		<dc:creator><![CDATA[Mare]]></dc:creator>
		<pubDate>Sat, 31 Mar 2012 12:20:38 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2085</guid>
		<description><![CDATA[Thank you so much for writing about hot flashes and Parkinson&#039;s.  My 90 year old father has been suffering from them for many years, but his neurologist did not believe it stemmed from the Parkinson&#039;s.  So, we pursued every other angle (thyroid, testosterone level); no issues there.  Dad uses ice packs on his head and body to find relief, but it&#039;s extremely frustrating for him.  At least we now know the cause; wish there were ways to eliminate the symptoms.]]></description>
		<content:encoded><![CDATA[<p>Thank you so much for writing about hot flashes and Parkinson&#8217;s.  My 90 year old father has been suffering from them for many years, but his neurologist did not believe it stemmed from the Parkinson&#8217;s.  So, we pursued every other angle (thyroid, testosterone level); no issues there.  Dad uses ice packs on his head and body to find relief, but it&#8217;s extremely frustrating for him.  At least we now know the cause; wish there were ways to eliminate the symptoms.</p>
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		<title>Comment on Hot Flashes come with Parkinson&#8217;s Disease by Theresa</title>
		<link>http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-2057</link>
		<dc:creator><![CDATA[Theresa]]></dc:creator>
		<pubDate>Mon, 19 Mar 2012 20:33:38 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=157#comment-2057</guid>
		<description><![CDATA[Thank you so much! I would go to the gynecologist and they would test my hormones &quot;your hormones are just fine&quot; me-why am I having hotflashes every 30 minutes? Dr-&quot;it must be your hormones&quot;.... This was before the Parkinsons diagnosis (for 7 years I was told &quot;Too much stress and fibromyalgia&quot;) Just diagnosed 3 months ago.
Its nice to know the Parkinsons may be part of the reason for the flashes.]]></description>
		<content:encoded><![CDATA[<p>Thank you so much! I would go to the gynecologist and they would test my hormones &#8220;your hormones are just fine&#8221; me-why am I having hotflashes every 30 minutes? Dr-&#8221;it must be your hormones&#8221;&#8230;. This was before the Parkinsons diagnosis (for 7 years I was told &#8220;Too much stress and fibromyalgia&#8221;) Just diagnosed 3 months ago.<br />
Its nice to know the Parkinsons may be part of the reason for the flashes.</p>
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		<title>Comment on Caregiver&#8217;s Loneliness by PeterT</title>
		<link>http://thecaregivercalling.com/2009/04/09/caregivers-loneliness/#comment-2054</link>
		<dc:creator><![CDATA[PeterT]]></dc:creator>
		<pubDate>Sun, 18 Mar 2012 02:17:43 +0000</pubDate>
		<guid isPermaLink="false">http://thecaregivercalling.com/?p=108#comment-2054</guid>
		<description><![CDATA[]]></description>
		<content:encoded><![CDATA[<p>In the last two years before I retired, my Daughter and her family moved nearby  to help with her Mom.  It was wonderful to have her there to help.  I was able  to be away for short periods of time without a worry.  While I have no doubt  three are many challenging times for you, it is good that you are managing them  together.  </p>
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