Comments for The Caregiver Calling http://thecaregivercalling.com Called to care for loved ones in need Sat, 03 Dec 2011 04:04:41 +0000 hourly 1 http://wordpress.com/ Comment on Hot Flashes come with Parkinson’s Disease by PeterT http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1644 Sat, 03 Dec 2011 04:04:41 +0000 http://thecaregivercalling.com/?p=157#comment-1644 Thank you so much for your comment. It is very affirming to hear that this was helpful to someone. Judging from what you do, you certainly understand how meaningful it is to be able to make even a small difference for good in someone’s life. I received far more than I gave in the years of caring for Mary Ann.
Peter

]]> Comment on Hot Flashes come with Parkinson’s Disease by Anita http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1631 Tue, 29 Nov 2011 13:30:26 +0000 http://thecaregivercalling.com/?p=157#comment-1631 Thank you for this beautiful blog. I am a nurse in Iceland, i read this for a patient of mine with parkinson’s and it helped her :) You have a great look on life.

]]> Comment on About by Raymond Tremain http://thecaregivercalling.com/about/#comment-1594 Tue, 15 Nov 2011 03:37:56 +0000 #comment-1594 Dear Ps. Peter I can only imagine what you must have gone thro, but the one thing that made it all the more easier was that you had God on your side, where most people may not even know God as the Savior and Healer, but I can say you were so blessed in being able to keep going for the whole time you had your wife with you.

Now praise God she is at home with at peace with our Lord Jesus.
God loves all
Raymond

]]> Comment on Hot Flashes come with Parkinson’s Disease by PeterT http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1562 Thu, 27 Oct 2011 20:40:03 +0000 http://thecaregivercalling.com/?p=157#comment-1562 George, Thank you for the information.  It may help those who come to this blog post.  I am sorry to hear of the struggles you are having.  The side effects of medications are sometimes as bad or worse than the disease they are treating.  Just for clarification, it is my wife who had Parkinson’s for over 23 years.  She is now deceased (a little over 16 months now).  I wrote the post you read during the two years I did full time care with her.  We did not do well in managing the symptoms of the Parkinson’s until we went to a doctor at one of the best clinics for Parkinson’s in the nation.  You are right.  Most generalist Neurologists are not current enough in all the medications and their side effects to manage effectively the combination you are on.  It is worth it to travel to another city to find the best. 

Thank you for your comment.  Peter

]]> Comment on Hot Flashes come with Parkinson’s Disease by George Crawford http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1560 Tue, 25 Oct 2011 22:27:35 +0000 http://thecaregivercalling.com/?p=157#comment-1560 I have parkinsons and have not had any hot flashes until I was given Soladex to treat my prostate cancer. I was diagnosed with prostate cancer and was put on Casodex, a hormonal type drug, and it reduced
my PSA from 6.0 to .2. I was aware that it had side effects including hot flashes but I did not feel any of them. I was on Casodex for about a year when I started having a lot of lower back pain, one of the side effects of Casodex. I was told to stop the casodex and I was to start Soladex which is similar. It is an injection that lasts for three months and another injection is given. A month passed and it was ruled out that the Casdex was not the culprit but since Zoladex lasts for the thre months, I would have to wait to switch back. About a week into the second month I started to have hot flashes, and noticed my parkinson got worse. I called my Neurologist.She told me that this was not a reaction to the drug, but a reaction to the stress caused by the hot flashes. I would not take the next injection nor would I re start the old medicine until effects of Zoladex are gone.It is now four months after the injection and the hot flashes are still with me and my Parkinsons is the worst I have ever had. If your husband is taking either of these drugs or other similar drug , go to the internet and read all about them. I have found that most people,including doctors, know very little about Parkinsons..I tell people that it a
measurment of stress.

]]> Comment on Hot Flashes come with Parkinson’s Disease by PeterT http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1512 Mon, 15 Aug 2011 01:47:39 +0000 http://thecaregivercalling.com/?p=157#comment-1512 Herbert, Mary Ann was taking Sinamet (Carbidopa/Levodopa) which seemed to be a contributing factor.  We cut back on that dosage.  It seemed to help a little, although it did make her a little less mobile — just one of those trade-offs.  Wet cloths and a fan helped.  Do be sure to check with your Cardiologist.  Mary Ann’s chest pains that we thought were acid reflux turned out to be heart blockages. 

Peter

]]> Comment on Hot Flashes come with Parkinson’s Disease by Bunny Rosenkrantz http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1511 Sun, 14 Aug 2011 20:46:06 +0000 http://thecaregivercalling.com/?p=157#comment-1511 There are cooling vests available to purchase on the internet. Might be worth the investment.

]]> Comment on Hot Flashes come with Parkinson’s Disease by Herbert Rosenkrantz http://thecaregivercalling.com/2009/05/05/hot-flashes-with-parkinsons-disease/#comment-1510 Sun, 14 Aug 2011 17:05:18 +0000 http://thecaregivercalling.com/?p=157#comment-1510 I am a 79 year old man diagnosed with Parkinson’s about 1 year ago.
I am on Azilect. During the last 6 months or so, I have been suffering from insomnia accompanied by a hot feeling and discomfort in my chest area.
I have drunk glasses of ice water, and application of ice packs to my chest area to help (slightly) with symptoms. It is supportive to know that I am not alone in this symptom. Thank you for pullishing his information.
Do you know of any other approaches to treatment of this symptom.

]]> Comment on Caregiver’s Loneliness by Judy http://thecaregivercalling.com/2009/04/09/caregivers-loneliness/#comment-1509 Thu, 28 Jul 2011 15:16:46 +0000 http://thecaregivercalling.com/?p=108#comment-1509 I am a caregiver and have been for the past thirteen years. My husband was diagnosed with Frontal Temporal Dementia when he was 49. It has been a slow gradual decline but he has declined very much over the past six months, which I knew would eventually be coming. He is 62 and I have very little time away from him and the time spent with him is like living in another world. He is very quiet, and when he speaks it very dysfunctional conversations as in reassuring him we only have one dog, the doors are locked and we are safe, etc.. It’s become a very lonely world. I feel that I am grieving regularly and it’s very sad and emotionally draining. I’m a very positive person and feel that I’m a survivor but recently I don’t know where to turn outside of a monthly support group. Even family doesn’t prove to be that supportive. I sympathize with others stories.

]]> Comment on Tried, but couldn’t stop the tears. by Elizabeth http://thecaregivercalling.com/2010/12/01/tried-but-couldnt-stop-the-tears/#comment-1493 Fri, 08 Apr 2011 19:19:42 +0000 http://thecaregivercalling.com/?p=1368#comment-1493 I check your page sporadically to see if you have a new post, but I never see one. I just wanted to check in on you and make sure you are OK.

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