Meaningful Caregiving

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July 28, 2010

Here We Go Again!

Posted by PeterT under Daily Challenges, Family, Life History, Meaningful Caregiving, Relationship Issues | Tags: , , , |
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We had just finished making some major changes to our home, knocking out a wall, putting in a new floor, decorating it creatively.  Mary Ann’s sense of color and elegant simplicity was reflected in the results.

Realizing what was coming with Mary Ann’s condition, I had concluded that I would finish out my ministry in OKC and care for Mary Ann there.  The parish was a comfortable fit for me on account of the warmth and graciousness of the people.   The congregation’s place in the polity of the church and my views were a good match.

Then came the contact from Kansas.  It came without warning.  My attitude was that I did not refuse an overture before there was a formal request (Call, in our jargon) to come and serve there.  My understanding of the process was that if it was from God, it would be foolish to sabotage the process.  If it was not, that would become clear soon enough.

There was a phone interview.  Rather than the on site interview that usually followed as the next step, there was a formal Call to come and serve the congregation in East Central Kansas (between KState and KU — of great significance in Kansas).

It was the end of 1995, Christmas coming.  The decision could not be processed meaningfully in the intensity of that season of the year.  I asked for time to think; it was granted.

There are no definitive steps that carry a person to an obvious decision.  The process includes all sorts of elements, including family considerations.  The center of the process, however, is discerning which direction the One in charge of such things is tugging.

Of course the various practical elements needed to be identified and weighed as to their significant.  There were pros and cons to be listed.  I have never found that list to provide a clear answer to the question, which way should I go.  The congregation in Kansas was twice the size with the same size staff we had in OKC.  I had not served in a larger congregation although I did grow up in one that size.  There was a school.  The congregation I served on my Internship (Vicarage) had a school.  We had chosen to send our children to Parochial Schools and valued their experiences there.  The Kansas congregation knew of Mary Ann’s situation but seemed not to hesitate in spite of that awareness.  The Kansas congregation was only a little more than an hour from KU Med Center, the only place we had found anyone who seemed to be capable of handling Mary Ann’s complex version of Early Onset Parkinson’s.  Our children by that time were done with college, so they would not be impacted one way or another by our staying or going.

The ministry in Oklahoma City had been intense, culminating in the OKC Bombing and the loss of Member Lee.  We had just begun a very successful midweek program called Logos.  We had a new and very talented Director of Christian Education, Chris.  We had variety in worship, with wonderful musicians for both traditional and contemporary liturgies.  The Early Childhood programs were thriving.  I had grown close to the membership especially through so many opportunities for doing Pastoral Care.  Actually, I had grown close to some of the Youth, who made a poignant “good-bye Pastor Pete” video that touched my heart.  There was some frustration that the congregation was not growing, but slowly declining.  I was concerned that what I brought to the congregation seemed not to be changing that pattern, even though we had a thriving ministry.

It was a very difficult decision, but finally it seemed as if rather than looking at concluding my ministry in OKC, there was a tugging to the Kansas congregation.  The fit there was also very good.  It felt as if I had been in training over my career up to that point for precisely what the Kansas congregation was asking me to do.

It was right at that point that Mary Ann took a turn for the worse and ended up in the inpatient program in Tulsa, as the new Neurologist tried to find the right combination of medications.

For Mary Ann, the move back to Kansas seemed to have a little of the feel of coming home.  We had both fallen in love with Kansas City.  It felt good to be close again.

There was one dynamic in particular that also made living only a little over an hour away from Kansas City seem like coming home.  When we first moved to Kansas City in 1972 to serve the parish there, we connected with a group of folks who had babies the same year.  Three other couples had boy babies, as well as having an older girl.  They had known one another from college and before.  One couple went to school together as children.  That group graciously included us and ultimately we felt almost like family.  While we were in OKC we vacationed together with that KC Crew in Texas (when I was able to reveal to them Mary Ann’s Parkinson’s diagnosis).  We had gone on a cruise in the Caribbean with one of the couples.  We celebrated birthdays together.

That group was expanded by a number of folks from that congregation with whom we had developed a friendship that continued after we left Kansas City, a friendship that transcended the role as Pastor.  There is a whole community of folks from there whom we value, with whom we have a loving and caring relationship.  Mary Ann was deeply loved by many.  Serving the new parish, we were close enough to allow those relationships to continue and to grow.

Mary Ann’s health, as well as the weight of a large congregation has not allowed the freedom to return to OKC to celebrate those relationships.  Since Mary Ann’s and my families are in Northern Illinois, any time and energy for travel took us north rather than south.  Travel was never easy and got harder as the years went by.  It is my hope that I will now be able to renew and celebrate the connection to so many people I value who were in the congregation when I was serving it there.  I still remember the tears streaming down my cheeks the last Sunday I served Communion to them, saying each name as my emotions would allow.  The organist, Shelbie, was playing her improvisation on “When in our Music God is Glorified” and leading the congregation in singing that hymn during that time.

Life has brought many separations.  The feelings of pain that come with those separations are signs of the deep value and meaning of the relationships that emerged.  On that account I embrace the pain and celebrate it.

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

July 26, 2010

Roman Nose Rescue

Posted by PeterT under Daily Challenges, Family, Help from Others, Life History, Meaningful Caregiving, Practical Tools for Coping, Sources of Strength, Therapeutic Activities | Tags: , , , , , |
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It was called Roman Nose State Park, named after an Indian Chief who had a Roman nose. I didn’t make that up.  Below you will find a bio on Henry Roman Nose.

I call it a rescue.  That is probably a little dramatic, but there is some truth in it.  Just days after I arrived in OKC to begin serving the parish in a suburb, the funerals started.  A number of the leading members of the congregation during my first few weeks there died.  The intense Pastoral care began.  That congregation taught me about Christian community, actually caring for others.  I did funerals for older adults, teen agers, babies, some via natural causes, some accidents, some violent deaths.  I still cherish a Pastoral stole given to me by a family who lost little Hillary just before she was due.

Doing Pastoral Care demands being on call 24/7 year round.  It was the most taxing and the most satisfying of the ministries in my portfolio.  One year there were a cluster of four funerals and a wedding in the span of two weeks including Christmas and New Year’s Day (the Groom chose that day so that he could remember their anniversary).  Without the addition of those Pastoral Care tasks, the Christmas season stretches most Pastors right up to the limit of their strength and stamina.

The combination of work demands and concern for what Mary Ann had to deal with took a toll.  Here is where Roman Nose comes into the picture.  One October, a Pastors’ Conference was approaching.  In the Oklahoma District the clergy were generally a pretty relaxed and congenial crew.  There would be time to relax and enjoy the Park, Roman Nose State Park.  The need for Pastoral Care intervened as a family lost a Loved One.  My hope was always to provide a healing presence to the degree possible.

Realizing that I would miss the break at the conference, I called to see if I could still get the group rate and just go on a Personal Retreat during the two days following the Conference.  The congregation Leadership fully supported that option.  I spent two days walking and reading and sitting and climbing and sitting and walking and reading all over the hills and valleys and bluffs of Roman Nose State Park.  I climbed over fences and through tangled brush in gullies.  I checked out the “healing tree” inside a protective fenced area, a place sacred to the Cheyenne who had lived there.

The place was a place of healing for me.  I can still picture the view as I sat at the very top of one of the taller hills, overlooking two small lakes.  A powerful Oklahoma wind was blowing in my face.  The sun was bright, the sky was crystal clear, the air crisp and fresh.  I felt what I would come to feel many times thereafter as I continued to go on Personal Retreats, relishing the solitude.  I felt whole, an intentional creation of a Someone who was providing me at that moment with the breath of life.  There was no distance between me and that Someone.

I had found great strength in Spiritual Formation activities during the years in the Kansas City area.  The Rescue at Roman Nose opened a new chapter in that Spiritual Formation.

Then came an experience that drew John and I together, finding strength in a regular time of Spiritual partnering and prayer as he ministered to his wife Sherrie through the last leg of her journey here.  I talked about Mary Ann and my journey and he talked about his and Sherrie’s.  The strength and courage of Sherrie became a source of strength for an entire congregation.  When I visited her, there would be a circle of three or four, maybe six or eight people in their living room.  She gave infinitely more than she received from all of us who gathered.  My ministry was profoundly impacted by Sherrie and John.

I can’t remember how I found out about it, but I am grateful that I did.  When we began taking Youth on Confirmation Retreats, DCE John and I took them a place called St. Francis of the Woods.  I have described it in great detail in earlier posts.  It has become a place of respite and Spiritual Renewal for me.  When I first went on a Personal Retreat there, the suggested contribution for a day and night’s stay in a two bedroom fully furnished cabin was $6.  There would be a loaf of home made bread waiting each time I arrived for a retreat.

Most of the times I went, I stayed two nights and walked for part of one day, a full day and part of a third day.  I read and walked and sat and did all the things I had done at Roman Nose.  The Orthodox Chapel, the woods and fields, 500 acres of working farm provided a rich environment for Spiritual Renewal.  Each time went I encountered that same healing recognition of being the intentional creation of Someone who chooses that I exist.

During my last two years in ministry in the OKC area, I attended two Spiritual Formation Groups (one each year) that followed the Shalem format.  The series was led by a local Pastor and Counselor who had been trained in the approach.  It involved a time of silent meditation, a time of journaling, and time for each person to share as they felt appropriate.

The Oklahoma years were an important time in providing a lab for learning to do Pastoral Care in a meaningful way, and providing a pattern of Spiritual Formation that provided the resources necessary to deal with the Bombing and Lee’s death as well as all that life had yet in store for Mary Ann and me.

Addendum:

Chief Roman Nose lived in this rugged canyon from 1887 until he died there in 1917. He was born in 1856 and given the name Woquini meaning “Hook Nose”. He grew to manhood within a hostile environment involving many Cheyenne raiding parties. In 1875 all warring Cheyennes returned to the agency at Darlington. Here he was arrested and sent to Ft. Marion in St. Augustine, Florida where he learned to speak, read and write the English language. He was then moved to an Institute in Virginia. Here he accepted the Christian faith and was baptized Henry Caruthers Roman Nose. His name Henry came from Richard Henry Pratt, the commander of the fort in St. Augustine. His name Caruthers came from Mrs. Horace Caruthers, his devoted teacher and friend in Florida. He learned tinsmith at a boarding school in Pennsylvania before returning to his homeland in 1881. Roman Nose discovered much had changed during the six years he had been away. Traditional Indian ways were almost nonexistent. White domination permeated all aspects of Indian life. Slowly he became disillusioned with what the whites offered. Roman Nose eventually spurned the white society. He left the agency and took his family to live in what is now Roman Nose State Park.

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

July 22, 2010

Life with Parkinson’s in OKC

Posted by PeterT under Daily Challenges, Information on Parkinson's, Life History, Meaningful Caregiving | Tags: , , , , , , , |
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Mary Ann insisted that her diagnosis remain secret for the first five years in Oklahoma City.  Some of it may have been her unwillingness to accept that it was so.  Certainly, much of it was that she didn’t want people looking at her and treating her as if there was something wrong with her.

It was very difficult to keep that information in since it had such a powerful presence in our lives.  Recently, Daughter Lisa told me how difficult those years were for her, not having permission to talk about it openly.  Mary Ann gave me permission to reveal it to a couple of people so that I would have someone to talk with about its impact on our lives.  If I wanted to add anyone to the list, I asked for permission from Mary Ann before telling him/her.

The secret became especially difficult to keep when the symptoms began to become more visible.  She would not let me tell our best friends from KC with whom we even vacationed at times.  I can remember the evening she gave me permission to tell them.  We were vacationing together in New Braunfels, Texas.  Mary Ann stayed at the condo since she was tired.  The rest of us went to a Beer Garden in nearby Gruene.  We sat together at a table and I finally told them what they already knew, that she was sick.  I told them it was Parkinson’s.

It was helpful to be free to talk about it with folks in the congregation when finally Mary Ann gave permission to reveal what it was.  All of them were loving and caring to us as we tried to deal with it.

Mary Ann had worked with a couple of Temp Agencies when we first arrived.  After about three years of that, one of the companies to which she had been assigned, Jack Cooper Transport, hired her from the Agency.  She worked something short of full time for the next six years there.  The people she worked with became her friends and support group.

Mary Ann could not be involved much in the life of the congregation since work took all the stamina she could muster.  There was certainly no chance to have the energy to do anything in the evenings, and little left on weekends.  I took Fridays off and tried to keep up with the house cleaning.  I was not terribly conscientious at it, but I tried to get the bathrooms and the vacuuming done and the beds changed so that we could spend time on Saturday together.

We made friends as a couple with some of the families in the congregation and visited, ate together, enjoyed each other’s company at various times.  The people in Oklahoma are some of the most gracious folks we have met.  The attitude there seems to be that people are accepted until they prove themselves unacceptable.  Folks don’t wait until people have somehow proven themselves to be worthy before accepting them.

Finding a Neurologist who knew enough about Parkinson’s to deal with the complexities of Mary Ann’s early onset variety was a challenge.  We never found one!  We started with a fellow who was pleasant to talk with.  He prescribed the basic beginning dose of the standard medication, Sinamet.  It helped some, but each time we met with him, we sat in his office across from him as he sat at his desk.  He asked if we thought the dosage should be changed in any way (yes, he asked us).

Immediately after the diagnosis, we began going to the Parkinson’s Symposia done at KU Med Center in Kansas City.  They have a Parkinson’s Clinic with a national reputation.  We would drive up there, at first without telling anyone why we were going to KC.  As a result, we had access to the latest and best information about Parkinson’s treatments.  It seemed clear very quickly, that the Neurologist we were using just did not have more than a very basic understanding of Parkinson’s and the available treatments.

We looked until we found another Neurologist in OKC.  That was our worst experience.  He is the one who came into the exam room without ever looking at either of us.  He sat at a little table just inside the door, looking down at the chart.  When he talked to us, he never looked up.  It was actually very weird.  By this time, Mary Ann had been on the basic med for treating Parkinson’s for a few years.  It worked reasonably well, as is usual in the first stages of Parkinson’s.

The last time we went to him was more than I could tolerate.  He suggested that Mary Ann might not actually have Parkinson’s, but have had a mild stroke impacting the left side of her body.  When I asked why then the Parkinson’s medicine seemed to be controlling the problem, he made a circle around his ear with his finger, indicating that improvement was in her head.  By the way, any Neurologist who knows Parkinson’s at all is aware that one of ways of confirming the diagnosis is to use Sinamet.  If the symptoms improve, it is most likely to be Parkinson’s.  Even I knew that.

By this time, Mary Ann’s symptoms were becoming more obvious.  After about eight years of taking Sinamet, the side effect of dyskinetic movements becomes a problem.  Those movements are the wavy ones that are often visible when Michael J. Fox is in the spotlight.  Mary Ann never had tremors, the fast movements in a hand or fingers.  Tremors are often a symptom of Parkinson’s, but not always.  She did have the dyskinesias that come from many years of using the Sinamet.

One time when she was at work, she just slipped off her desk chair on account of those movements.  She hit her side on the corner of a two drawer file and broke some small ribs.  There was nothing other than pain medication that could be done until they just healed on their own.  Mary Ann’s co-workers at Jack Cooper were caring and supportive, always watching out for her.

After the horrible experience with the last Neurologist, we were at a loss as to what to do.  Somehow, I became aware of an attempt by a hospital in Tulsa to develop a Parkinson’s program.  It was brand new.  A local Neurologist was developing a team approach.  We applied and Mary Ann, of course, qualified.

She was scheduled for three weeks of in-patient care as they would try to come up with a medication regimen that would work for her.  Tulsa is 90 miles from OKC.  I was doing full time ministry, trying to go back and forth.  Mary Ann hated being there, and I hated having her there.  What was especially frustrating was seeing how haphazard the treatment was.  Pills were often not given at the scheduled times. (the doctor’s schedule).  The Staff seemed unaware that the timing of Parkinson’s meds is crucial to their effectiveness.  Having been to enough of the KU Med Center Symposia, I knew that protein in the stomach at the same time the Sinamet  competed with its absorption and reduced its effectiveness.  That meant there was a need for low protein meals early in the day when the Sinamet was taken and the ability to move was most crucial.  I mentioned that the Neurologist in charge of the program.  She did not consider it an issue of any importance.

The medicine regimen that Mary Ann ended up with was a fairly complex combination of regular and time release Sinamet.  A problem was that the time release version of Sinamet exacerbates the side effect of dyskinetic movements.  That was Mary Ann’s most difficult problem.

Mary Ann just could not stand staying there the whole three weeks.  She managed two weeks.  When she returned to OKC, it was apparent that she would not be able to handle returning to work.  She was on temporary disability from her work, but it was at that time that we moved, since I had been called to a congregation here in Kansas.

During the years in OKC, the Parkinson’s grew in its impact on Mary Ann and on our lives.  We never found our way to anyone there who seemed able to handle the complexities of Mary Ann’s early onset variety of Parkinson’s.

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

July 13, 2010

The Call to Live

Posted by PeterT under Daily Challenges, Help from Others, Meaningful Caregiving, Therapeutic Activities | Tags: , , , , , , |
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It popped into my mind and it just seemed right.  There is some technical work to do to get it to this blog account, but the new blog name will be “thecalltolive.com.”  Do not try to click on it yet.  I realized that yesterday and today, I felt alive again.  I may not feel that way tomorrow, but it is the call to live, not yet a done deal.

Living is a choice.  I am choosing life.  I am not going to wait for it to just happen by itself.  The good news is that it has actually happened.  That was God’s choice.  My choice is to trust his choice and live it to the full.

I suspect the last two paragraphs reveal that the signs are pointing toward healing.  I am not so naive as to think that because I felt good today, tomorrow or the next day or the one after that will feel good too.  The pain of a loss like this will remain with me until the day I die and get to see her again.  It will come at unexpected times.  It will always be accessible.  My hope is that the pain will ultimately help increase the depth, the strength and the resilience of the life that lives in me. The life that lives in me is no more or less alive than the life that lives in you.  Somehow, when I say it that way, it sounds dumb, silly.  Nonetheless it is so.  Each of us is as full of life as the next.  It looks, feels, tastes, smells different, but the source and the power are the same.  What we do with it is a matter of choice.

Now, to the day.  I got up late, but managed to walk the two miles at Cedarcrest before it got unbearably hot.  That came a little later in the day.  Tomorrow will be worse (110 heat index).

After showering, changing the bed, throwing in a load of wash, I responded to phone messages, emails, and got busy on the list.  The list is insidious.  For every one thing I check off, three more mysteriously appear.  A couple of lunches and an evening activity are in the works.

I did it!  I have now paid for it, so I can’t get out of it.  The first session will measure my body fat.  Who the heck needs to measure it.  It is right out there for everyone to see!  I am now committed to eleven sessions (two per week) of exercise with a trainer.  What have I done??????  I even bought a pair of running shorts (there will be no running) for the walking and exercising.  What kind of fool am I?  (Is that a song?)

I ran into a young person I know at the coffee shop whose husband died suddenly a few years ago.  We took the time to counsel one another.  I think it was helpful for both of us.

After that the last ten days mail was delivered.  No bills!!! That was a treat.  There was a huge stack of cards from folks who have just found out about Mary Ann’s death (still hard to write — always will be, I suspect).  I continue to be overwhelmed by the number of people who care about us.  The words of comfort, the thoughts and prayers of so many have buoyed us up over the years.  Many of those responding have sent lengthy notes recalling past experiences when we were together.

It continues to be an odd sensation to be on the other side of this ministry business.  So many have had helpful bits of wisdom to share from their experience.  I am humbled by their insights — and I thought I was the one with the fitting words to say.

I am going to continue the story of Mary Ann’s and my life together.  It has been very therapeutic to move through those years we shared.  The Mary Ann I have known and loved is coming back into full view.  It helps to spend that time together again, if only in words and memories.  What I am writing is intended to focus mostly on Mary Ann and our time together.  To make sense of it I am including the Cliff Notes version of my ministry.

Ironically, the church controversy that I have been mentioning as a tease of things to come, is not over in our national church body.  Elections at the National Convention this week are stirring the pot.  That is for someone else’s blog, not mine.

As I am continuing our story in thecaregivercalling.com, as soon as it is ready, I will also write posts like tonight’s in thecalltolive.com.  Don’t click on the new one yet!

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

July 10, 2010

Day of Healing

Posted by PeterT under Family, Help from Others, Meaningful Caregiving, Practical Tools for Coping, Relationship Issues, Sources of Strength, Therapeutic Activities | Tags: , , , , |
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There must have been a lot of prayers going to the Lord on my behalf this morning.  The service seemed to go very well — and my emotions stayed at an appropriate level.  That was a gift from the Lord.  Yesterday had not been a very good day in terms of the presence of the pain.  It lay just beneath the surface of my interactions and conversations. 

This morning my apprehensions about what might bubble to the surface during the service were strong.  I had a moment by myself in the van on the way to picking up Joy who would be playing in the service.  As I drove the purpose of the service came into focus again, to affirm the Lord and the witness of Mary Ann’s life.  It was not to demonstrate my grief or display it or garner attention for myself.  Accomplishing those goals was no longer in my hands, but the Lord’s hands. 

That peace that comes sometimes when there is an encounter with the powerful love and Grace of the Lord settled as I drove.  It freed me to release the nervousness.  Lot’s of times I ask for the Lord’s help.  This time it was clear that I could not do this myself.  I don’t have control over my feelings.  They have a life of their own.  Making it through the service was a gift, not an accomplishment. 

The result was that I benefitted from the service more than anyone else.  It really did feel good to have the service at the place where Mary Ann and I both made many of the important transitions in our lives.  It helped provide perspective on her death.  It became part of a continuity, beginning, middle, end, new beginning. 

Most of the people gathered were people who knew Mary Ann when she was a child, a young adult, long before the Parkinson’s.  Their connection with her was longstanding.  It felt good to me in that way to be present again with the Mary Ann I knew from the beginning of our life together.

It was good to have a connection with the congregation from which I retired through Julianna who now lives in Chicago.  She is a Director of Christian Education at a congregation there.  Her Mother serves as the Director of Children’s Ministry at the parish from which I retired. 

It was very meaningful to me that Daughter Lisa, Denis, Abigail and Ashlyn, and Son Micah, Becky and Chloe drove so far just to be part of this community and to give me support.  The family doily that has been popping up in presents or suitcases or any number of places over the years, appeared on the lectern when I came to the front to lead the service (thanks to Becky and Lisa). 

What followed with the lunch and memory sharing time was profoundly healing to me.  It took a long time to get rolling, but the stories and impressions began coming out more and more.  I have always spent about an hour and a half with families a day or two before the funeral of their Loved One, doing what we did this afternoon.  I ask for stories from the person’s life, memories that reveal something of who they were.  I now realize that may have been the single most beneficial part of the ministry to those who are dealing with a death. 

At the moment, it feels as if I have actually regained some of the good feelings that came with having Mary Ann as a part of my life, being a part of hers.  Talking with, spending time with members of her family, nephews and nieces, sisters-in-law seemed to bring me closer to her.  Listening to her three closest friends, Joy, Terry and Cherri, brought me back to our first days together and times we all spent with one another, as well as pictures of her from before I knew her personally. 

Later in the evening, a small group gathered at my Sister’s home.  That group included all five siblings in my family.  The other four range in age from 81 to 72.  I am 6 and 1/2 years younger than my closest sibling.  We are three boys and two girls.  There were lots of memories shared.  We have different sets of memories from our growing up years.  This was a chance to connect the dots on some of them.   We all love each other and enjoy each others company.  We do not necessarily always agree on everything, but we are family.  That time was also very healing to me. 

I have absolutely no idea if the sensation of being healed of some of the pain will last hours, days, weeks or months.  I know that there will be lots of painful times to come.  At least for the moment, a sense of wholeness has returned.  Thank you for all the thoughts and prayers. 

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

July 4, 2010

It was a Friday in April of 1972

Posted by PeterT under Daily Challenges, Family, Help from Others, Meaningful Caregiving, Practical Tools for Coping, Relationship Issues, Sources of Strength, Therapeutic Activities | Tags: , , , , , , , |
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Mary Ann, Lisa and I spent two summers at Camp Beaumont outside of Ashtabula, Ohio.  We packed up enough of our belongings in a U Haul trailor to live in a one bedroom log cabin for each of two summers.  Milt was one of three of us on the faculty who hung out together.  Milt was the art teacher.  He went on to become the head of the Art Department of a college in Nebraska.  Milt was also active in Scouts.  He convinced me to take a summer job as the Catholic, Protestant and Jewish chaplain of a large Scout Camp of some 1200 acres, with 36 sites for troops.

There was a little ring of six or eight cabins for the staff of the camp.  Mary Ann and Lisa hung out with the other families while I ate with the troops, explaining the Religious Awards.  Almost every meal was hot dogs and beans, except for the Jewish troops, who served Kosher hot dogs and beans.

The second summer I bought a bicycle for $3 at a garage sale and road it all summer long.  I had calves of steel that summer.  Poor Lisa got poison Ivy once from the socks I wore with the Scout shorts.  The cabins were simple and very rustic.  It really was a very pleasant setting.  Since we were so close, we made it to Niagara Falls for a visit.  There was a classmate there who took us out to a nice Seafood restaurant to have a leisurely paced meal at a very nice restaurant.  We visited a mushroom farm which was really fascinating.  We ate or put in the freezer package after package of white button mushrooms.

When we were visiting our families in Aurora the Christmas of 1971, driving to my parents house, some smoke came from under the dash.  We never found out what it was, but it was a little unsettling.  After we got to my parents’ house where we had been staying, Mary Ann started feeling badly.  In fact, she began to become rigid as in a mild seizure.

I took her to the Emergency Room in a small nearby hospital.  The doctor had a thick German accent and was about as arrogant and rude a person as we had ever encountered.  He simply decided that we had been arguing and she had gotten so upset that she reacted physically.  It was not so, but he did not believe us and looked for no other explanation.  The next day we went to the doctor we had both grown up with in Aurora.  He put Mary Ann on an anti-seizure medicine as a precaution.  We later discovered that at that time Mary Ann was in the first weeks of being pregnant with our Son.  I guessed that somehow that triggered it, but I have often wondered if that event could have triggered the Parkinson’s.  The literature on Parkinson’s would allow a brain trauma of some sort as a triggering event.

With a second child on the way, we realized that the little house we were  renting would not be big enough for four of us.  We started looking for a house to buy.  We decided to consider a duplex in hopes that the rent from the second unit would help pay for it.

On a Tuesday in April we put $500 down as earnest money on a duplex.  It was the Friday of that week, Mary Ann four months pregnant, a contract out on our first house that Principal Gunther (Gint) asked for an appointment.

Here is how he said it.  We need a new head of the Religion Department and you are not yet ready for that.  We will not be renewing your contract next year.  You need to start seeking a Call (job offer) someplace else.

It was as if the floor had just dropped away, and there was nothing there on which to stand.  (Why do I resonate to that description again now?)  I had to go home and tell Mary Ann that once more, she was pregnant and I had no job.  I called the realtor, who, gratefully, was able to get the $500 check back.

I can only guess that Mary Ann was probably wondering again what she had gotten herself into when she married me.  She had the decency not to say it out loud to me.

When I had left the Principal’s office I went to talk with the other of the three of us who hung out together, Jack.  Jack taught English, but his passion was Drama.  He went on to the English/Drama department at a College in St. Paul, Minnesota.

I have no memory of that weekend and the beginning of that next week.  I do, however, have vivid memories of what started that next Wednesday.

Enough of that for today.

I am now writing from Louisville, Kentucky.  I have been here since Friday evening.  It is good be with Lisa and the Girls and Denis.  It was painful to leave the house Friday morning.  I usually love getting on the road and driving somewhere.  There has been an exhilaration, a freedom I have always felt out on the open road.  I had no such feelings.  It seemed as if I was leaving her behind.  Someone who had lost a spouse recently said that she doesn’t like being away from the house and gets anxious to be home, and then she doesn’t want to be at home when she gets there.  I understand.

It felt very different to be traveling without the constant apprehension about needing to find a bathroom and dealing with taking her into the women’s rest room.  Ironically, the rest area I stopped at in southern Indiana, had a Unisex bathroom.  Now I don’t need it.

It has been good here to be with the Kids and Grandkids.  It is easier not to be dealing with the challenges of stairs and bathrooms and wheelchairs, but I would do it in a minute if I had the chance to have her back.

Yesterday I stopped at Walgreen’s to get a birthday card for Lisa, whose birthday is today, the Fourth of July.  Do you have any idea how many “to Daughter” cards there are that say “from Mother?”  It caught my insides as I tried to pick out a card — something we would have done together.  I picked one that was from both of us.

Yesterday evening was a party that Lisa and Denis had arranged with many of their friends.  Some of them had already met Mary Ann and me in the past.  Lisa and Denis have a wonderful group of friends that function sort of as a local family.  I enjoyed the evening since conversation is a helpful   to me.  There were Kids playing everywhere.  It was entertaining to watch.

Today, Sunday, it was clear from the moment that I woke up, that it would be an uncomfortable day.  I didn’t realize how much I would struggle to keep it together later.  I find the worship services at Lisa and Denis’s church to be very meaningful.  They do a full liturgy, but in a relaxed and welcoming way, rather than a formal way .

Todd who does the music is a real gem.  His work at the keyboard is reverent and accessible.  There may be jazz, classical, or any number of different styles, always perfectly done.  Pastor Paul preaches using lots of visuals, mostly images of great art pieces.  The service is on a large video screen at the front of the church.

Today the service and message were on healing.  The wording of almost everything was not only very compatible with my current need, it spoke almost directly to it.  In many traditions anointing with oil is a liturgical practice intended to bring an awareness of God’s healing into a person’s consciousness.  Today, just before the end of the service the option of going to the rear of the Nave to receive a bit of oil on one’s forehead and a prayer by one or both of those at the station.  It is not done in a magical way but in a way that draws to together the pain and the healing presence of the Lord’s love.

I decided to take advantage of that opportunity.  By the time I returned to my seat, tears were streaming down my cheeks.  I worked hard at trying to keep it from being too obvious and distracting to others.  Lisa was crying quietly when she returned too.  The girls were watching us as attentively.

I was able to talk with folks again after the service.  There were some good conversations with some very interesting people.  During the rest of the day, we did some shopping, had coffee, ate out, sang happy birthday and came home to rest.

Denis and I went shopping at Best Buy and I ended up buying a laptop computer so that when I am traveling I can continue writing.    By the way, I am continuing to work on the thank you notes.  They have all been written, but they now need to be addressed, sealed and stamped.

I stayed back from the trip to see fireworks tonight so that I could get a head start on writing.  Now, I need to get some rest. (Too tired to edit the post, it is gong out as is.)

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

July 2, 2010

Quilters Tell Racy Jokes

Posted by PeterT under Daily Challenges, Meaningful Caregiving, Relationship Issues, Therapeutic Activities | Tags: , , , , , , |
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They laughed and laughed, and then they laughed some more.  The worst one of them was 94 years old.  She told the raciest jokes.  I loved going in there to talk with them.  They were just a couple of doors away from my “office” which was some sort of storage room in the basement of the church.  We used the quilt they gave us when we left until it was worn through and in tatters.  Mary Ann salvaged parts of it and made a vest, a number of place mats and lots of Christmas tree ornaments in the shape of little stockings.  When we cleaned out the closet ten days ago, we found a piece of it in a plastic bag hanging from a hanger.

My salary that year (1967-8) was $250 per month with a $25 auto allowance.  We managed to live on that and save Mary Ann’s entire salary at the bank for the last year of school (1968-9).

We, of course, immediately located the best ice cream place in town, Atz’s.  Actually, I had already discovered it a couple of years earlier when I attended Concordia Senior College there before entering the Seminary.  I remember the Sundae having three scoops of chocolate mint chip ice cream, with lava flows of hot fudge running down each scoop, heaped on top with nuts, whipped cream and a cherry.  I remember it being called a turtle sundae.  I wish Mary Ann was still here to help me remember that accurately.  Suffice it to say, we made very regular trips to Atz’s.

The Saturday before my very first time in public, leading worship, Mary Ann gave me a hair cut so that I would make a good first impression.  I am not sure what caused it to happen, but her hand slipped or I moved my head.  The electric clippers cut a swath from my temple to my ear, down to the skin.  I had a lot of hair, so the contrasting pink skin on the side of my head stood out in comparison to the dark, thick hair.  The solution?? An eyebrow pencil, of course.  She drew in the hair that was missing.  That worked when my face was turned to the side, but the notch was clear when looking at my face from straight on.

My first impression became irrelevant since the Pastor I was serving went into the hospital for tests the following Tuesday and remained there for a month.  I preached, made 75 hospital calls, attended all the meetings, ministered to the dying, taught classes.  In fact, I remember very clearly how irritated I was when he returned and took over my congregation.  It was a wonderful baptism of fire.  I had no time to be scared.  I just had to do whatever needed to be done.

The Vicarage (Internship) from hell part is harder to explain.  The Pastor was obsessive compulsive about record keeping and monthly reporting to the Elders, down to how many pieces of incoming mail and outgoing mail we processed and how many incoming and outgoing phone calls we made.  The Pastor was hopelessly racist and talked often in ways that were intolerable.  By the way, the grade he would give me counted for twelve hours of credit and would make or break the option of graduating.  He admitted that the congregation didn’t like him.  I actually provided a sort of therapeutic setting for him when we met to talk.  His approach to ministry seemed completely empty of what I understood Christianity to be about.  In fact, my experience there convinced me that it would be a waste of time to serve a congregation since there was no evidence that the message we were about was expressed in any way that I could see there. That is the part that ended up impacting Mary Ann and me later.

That was a year when Star Trek hit the airwaves.  Not only did I get caught up in it, but another Vicar (Intern) assigned to Ft. Wayne, Lyle, did too.  Mary Ann just laughed at us as we sat at the kitchen table and meticulously glued together our respective models of the Enterprise.

One of my worst moments came that year.  It only happened once, but it happened.  A student from the Senior College who played the organ for us that year came over.  We splurged and ate out.  There was a Manhattan before dinner, wine with dinner, a Liqueur after dinner.  Then after taking Mary Ann home, Paul wanted to take me to a favorite bar to have some sort of Martini made with a chocolate liqueur, I think.  Then he bought me a Rusty Nail.  My taste buds were so numb, I drank it down like a soft drink.  When we got home, I remember needing to stay very close to the wall as I walked in.  We have one of the best photographs I have ever taken of Paul sitting on the couch next to Mary Ann.  I have absolutely no memory of taking that picture.  I do remember the next few hours hugging a large white porcelain repository into which large quantities of the contents of my stomach were deposited — seemingly much more than I had consumed.  Did I mention that Mary Ann’s Mother was visiting us at that time?  I found out some time, that since I was camping out next to that porcelain receptacle with the door to the bathroom locked, she had to pee in a tin can.  We are none of us perfect!!

That Christmas we were not going to get a tree, but finally, we just had to get one.  We found one for 50 cents that we put on the top of a round book shelf that was Mary Ann’s table sitting next to her until days before the end when she could no longer sit up.  That tree helped establish our tradition of finding the most pitiful tree we could get and decorating it for Christmas (a Charlie Brown Tree).  Our kids gave us much grief over the years at our choice of Christmas Trees.

That is the year we got to know Roger and Jan.  Roger was another Vicar assigned to a church in Ft. Wayne.  They ended up the next year becoming Lisa’s Godparents. Roger and Jan loved dogs, especially Poodles.   There little Poodle, Happy, gave birth to a litter of pups, all who were registered and soon had their papers.  Mary Ann fell in love with one of the little puppies.  We named her MAT’s Happy Suzette. She was a ball of fur with stubby little legs who became the grumpiest Poodle on the planet.  She will be a central character in a post to come about the birth of our first child, Lisa.

One ironic note on the congregation I served from July 1967 to June 1968.  There was an old fellow, Ralph, who came around often.  I got to know him well.  He was great at dart ball (underhanded darts played competitively between church men’s groups).  Ralph had Parkinson’s Disease.  His huge lower lip hung down so that his gums showed and the drool ran and his dentures rattled.  On that account he could not talk very clearly.  He shuffled along and came by often.  I was never unkind to him.  We got along well, but I was grossed out by how he looked.  When I got the phone call that Mary Ann had been diagnosed with Parkinson’s, the vision of Ralph came immediately to mind.  In all her years with Parkinson’s, Mary Ann always remained pretty.  I found her as desirable at the end as I found her at the beginning of our relationship.  The soft kisses that we savored when standing in front of the fridge only a few weeks ago were as sweet as any we shared in all our years.  I miss her terribly.

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

June 29, 2010

Wow, What a Honeymoon!

Posted by PeterT under Daily Challenges, Family, Help from Others, Meaningful Caregiving, Practical Tools for Coping, Relationship Issues, Sources of Strength, Uncategorized | Tags: , , , , , , , , |
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No, this will not be one of those “too much information” posts.

That first year at the Seminary, I was singing in a very good choir made up of students from the Seminary and singers from some of the Lutheran churches in St. Louis.  There were probably sixty or a hundred Lutheran churches in St. Louis at that time.  A radio station in Holland had tried to get St. Olaf’s choir to come for a Heinrich Schuetz festival there.  Somehow, they got hold of a tape of our choir and offered to pay us 30.000 Guilder to come to their radio station studio to sing and make recordings.

Mary Ann was not singing in the choir.  She had started working full time at a bank so that we could continue to survive while I went to school.  I continued to work part time during the school year and full time during the summer at Clark-Peeper Office Supplies in Clayton.  Even with the promised 30,000 guilder covering a portion of the cost of the trip, each of us had to pay a portion also.  I don’t remember how much.  I do remember that we could take non-member spouses along for about $750.

We knew we might never get a chance like that again.  We had enough savings in the bank to cover the cost for me and for her, enough for a little spending money on the trip, leaving $100 in the bank for when we returned.  That would be enough to pay the next month’s rent, with nothing left over.  Mary Ann’s bank said that they would not have a job waiting for her when we returned.  We decided to do it!

We flew to Washington, D.C. and on to London.  We spent four days there, visiting cathedrals, riding the Underground (subway).  We sang at King’s College Chapel in Cambridge.  The trip there was harrowing.  The tour bus driver was nuts!  Of course he was driving on the wrong side of the road, that was to be understood, it was England.  However, when a blind curve was approaching while on that two lane road, he moved right out to pass a car.  He was traveling at a frighteningly high rate of speed. Our worst fear was realized when a car appeared coming toward us from the other direction on that curve – traveling at an equally frightening rate of speed.  We passed three abreast on that two lane road.  It took hours to clean the seats on the bus — okay, it almost scared us that much.

We drank warm, bitter beer and ate beef and kidney pie.  That was about as bad as it sounds.  We saw all the usual sights.  Both of us decided that we wanted to return some time.  That never happened.  We were right about the once in a lifetime opportunity.

Then we flew into Amsterdam and drove to Noordwijk-Aan-Zee, a small resort town on the North Sea.  There we stayed in a boarding house while we went back and forth to the radio station in a larger town nearby.  I remember riding bikes together to the laundromat.  I remember that the wash water was scaldingly hot.  Someone in there managed to warn us about that even though they spoke only Dutch and we spoke none.  I knew a few German words, but we were told that it would be far better to stick with English than to use any German.  Our bus was picketed at one point because we had a German bus driver.  The war was still fresh in people’s minds.

The weather was too cold for swimming, but we rode to the beach of the North Sea just to see it.  The breakfasts were cold cuts and cheese and breads.  For all the meals, all five days, we had the very same cloth napkin kept in a plastic holder at our place at the table.  We had fried chicken one night.  As a somewhat compulsive hand washer, it was a horrifying experience!

After recording for the Heinrich Schuetz festival, we headed on to Germany.  Only West Germany was accessible at that time.  We saw the huge Cologne Cathedral, Frankfort, Munich.  We visited castles, Linderhof, Neuschwanstein (where from the balcony of the throne room we saw one of the most beautiful views I have ever seen, a lake nestled in between wooded mountains).  We saw what was left of the Heidelberg Castle boasting the largest wine barrel ever filled with wine, so large that it had a dance floor on top.  We did a concert in a cathedral in which there was a full five seconds of reverberation after stopping the final chord. (We heard tell of one castle that had a seven seconds of reverberation.) It was a powerfully moving experience to sing in those churches.  We sang a total of 8 times in three weeks.  The rest of the time we traveled and saw so many beautiful sights.

Classmate Louie (nickname) and Elise had moved their wedding date to just days before the trip so that they could be together on it.  In Muenster, it happened that they were assigned to stay in separate places.  There were tears flowing.  Since by then we were an old married couple of six months, we offered to stay in separate places so that they could stay together.

In Muenster we stayed in homes for two nights since one of the members of the choir was recently from Germany.  We sang at her home church in Muenster.  Mary Ann stayed with a family that spoke English.  I did not stay with such a family.  Actually, I ended up in a boarding house run by a family from church.  The first night was fine.  One of the other boarders was Franz von den Ohden Rhein (Frank from the Old Rhine), who spoke English.  The second night Franz was gone.  I sat at the supper table with six or eight people who could speak no English, not a word.  I knew my one sentence in German, the one that revealed that my Mother was born in Germany.  That was it.  The good news was that after a few bottles of wine, we seemed to be able to communicate without much trouble (at least that is how I remember it — what I remember of it).

The adventure continues tomorrow.  (Can you say “Bobby Kennedy??”)

Today was a better day.  The morning walk was reassuring in that again, I actually enjoyed the sights and sounds.  The pain allowed me room for that.  After I got cleaned up, I got a cup of coffee at PT’s and was greeted by Sara and Kelsey.  They are barista’s who have been very thoughtful and welcoming to me.  I taught Kelsey in Confirmation Class and Confirmed her a number of years ago. She is very newly married.  She had some very thoughtful and affirming words.  It warmed my spirit.  A good way to start a day.

I wrote some thank you notes and then headed to Paisano’s for the monthly lunch with Jimmy.  He lost his wife many years ago and understood very well what I am going through.  After that I stopped for a moment to drop something off at church.  There I spent a few moments with Linda and Marilyn who were part of my support system for many years, whether they realized it or not.  They knew.

When I went to the Wild Bird House to stock up on feed for the birds, I was greeted very warmly by Melody and Todd, who had only a day or two before discovered that Mary Ann had died (still very hard to write or say).  Todd came over and put his arm around me to comfort me.  We have just talked on occasion over the last few months, mostly about birds.  I would stop there most weeks while Mary Ann was in her Tuesday morning Bible Study.  It helps so much to have people around who seem to care, trying to provide comfort and understanding.

I spent the middle of the afternoon writing thank you notes.  They brought me close to tears more than once as I thought about what Mary Ann went through.  I was also overwhelmed in a good way with the realization of all that so many people did for us.  The hours that people spent here are far beyond counting.  It is not even remotely possible for me to repay what was given.  Those who came usually enjoyed Mary Ann, but they were sometimes scared that she would pop up and then fall, maybe hurting herself.  I think people felt good that they were really helping us, making a substantial difference in our lives.  I think many felt that they were doing a ministry for Faith by freeing me to continue to serve Faith while Mary Ann could not be left alone.

It is also clear that Mary Ann ministered to those who came.  So many have been struck by her courage and unwavering faith in the face of all she went through.  She did not complain.   People could talk with her and know that it would not be shared with the next visitor.  I still marvel that she just took the next hit whatever it was and went on as if nothing had happened.

This afternoon, friend and former parishioner Mark came over to talk and listen.  He has been through this.  He phoned Sunday afternoon, knowing that it would be a terribly painful time for me.  We set this time then.  Mark brings with him a strong and vivid faith along with some counseling experience, as well as having lost his wife whom he loved just as I loved Mary Ann.  He walked me through a Psalm that was especially meaningful to him at the time of his grieving.  The content of our conversation will remain between us.  It is enough to say that it was a helpful, meaningful and comforting time for me, immersed in the Grace of God, and the healing God provides.

It has not been an easy day.  Easy is no longer an option, at least for now.  It was a better day.  The pain was clear and identifiable, always ready to pop back fully into view.  It did not express itself as often or with as much intensity as it has in the last days.  I am not so naive as to think it will not come back with full intensity whenever it chooses.  It was just helpful to have a day in which it did not rule.

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

June 28, 2010

“I Hear It Was a Rush Job”

Posted by PeterT under Daily Challenges, Family, Help from Others, Meaningful Caregiving, Practical Tools for Coping, Relationship Issues, Therapeutic Activities | Tags: , , , , , |
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An older cousin of mine came through the greeting line downstairs where the reception was being held after the wedding. Once she said it, she realized what she had said, but my classmates standing next to me had a great time with it. I immediately responded, well, we have been going together for three and a half years and engaged for six months — and I almost said, and she is not pregnant.  The Cousin was talking about the short amount of time we had to do the preparations for the wedding with only a few weeks from October to December.  I always wondered how many of the wedding attendees were surprised when that first baby didn’ t come until over three and a half years later.

The wedding itself was as beautiful as any, even though it was done on a very low budget.  We were old enough that we didn’t really expect our parents to provide lots of money for it.  Mary Ann’s parents did take care of the reception.  It was a cake and punch reception in the downstairs of the church.  The cake was baked by a sister-in-law who was a phenomenal baker.  She made wedding cakes out of her home as  a small business.  That was her wedding present to us.  Mary Ann’s Mother was an excellent seamstress. She made the wedding dress, and (I think) the bridesmaid’s dresses.  Since it was Christmas the Bridesmaid’s dresses were red velvet.  Since we couldn’t afford flowers, they held white muffs.  The church was decorated for Christmas with trees and lights.  We did provide a couple of flower arrangements (or somebody did), as well as the flowers Mary Ann held.

Instead of a photograper, one of our friends just took slides of the wedding.  We did rent tuxes, at $5 each.  I think that was the going rate during those years.  We decided that there would be no family members in the wedding other than Mary Ann’s Niece Diana.  At thirteen she was the oldest of all the Nephews and Nieces and especially close to Mary Ann.  Since we were both the youngest in our families with a total of seven older siblings, all married and with children, we knew we could not ask some and not others — so we just asked none of them.  Anyway, if Mary Ann’s brothers had been in the wedding, who knows what those Mizel boys would have pulled.

After the wedding and reception, we packed up our stuff, including all the presents and headed off for our exotic honeymoon.  It was the Joliet Inn, a very ordinary motel in Joliet, Illinois, although it did have a Honeymoon Suite — a room with a four poster bed, otherwise like any other room.  Joliet was about an hour from Aurora.  We decided to go crazy and instead of driving all the way to St. Louis (only about a five hour drive) we stopped at the Lamplighter Inn in Springfield, Illinois, another very ordinary motel, possessing no honeymoon suite.  That was the extent of our exotic honeymoon. (…but just wait)

Mary Ann had insisted on taking the presents back with us unopened so that she could take her time opening them in our first apartment in St. Louis.  She got some grief from a few folks who wanted to see that ritual.

There we were, Mary Ann, me, the presents and the cockroaches.  Somewhere I have the picture of Mary Ann in her bra and girdle (it was the 60′s) standing on a chair, while I crushed a cockroach with her shoe.  It was so big, at first we thought it was a mouse.  The cockroach was fully as long as the heal on her loafer, the weapon of choice. It was a first floor apartment in an old, but stately looking building.  We were just about the only Gentiles in the building.  There was a Mezuzah on the doorframe from the last owner. A Mezuzah is a little container with a tiny scroll in it with what is called the Shema, written in Hebrew.  I still have it somewhere.

The was good news and bad news about being in a first floor apartment.  It was easier to carry things into, and it was cooler in the summer than the third floor apartments.  The bad news is that all the cockroaches living in the basement had easy access and could be heard running around the kitchen during the night.  Getting up at night and turning on a light in the kitchen was a pretty frightening experience.

We were located in an especially beautiful area of St. Louis, just off Wydown boulevard. One of the prettiest pictures we have of Mary Ann is of her face in the middle of a flowering Crabapple in full bloom in the wide median of the bouldevard. Just north of us were huge homes of the very wealthy.  There was a nice Jewish deli and grocery near the apartment, which for some reason did not have a pound of bacon when I went there to get it. I wonder what that was about??  The Velvet Creme Ice Cream store was not far, so we were all right in that regard.

About two weeks after we were married, I came home from Clark Peeper Office supplies where I worked part time all three of the Seminary years we were in St. Louis, and I knew immediately when I saw her face what had happened.  There were tears streaming down her cheeks.  The phone call had come telling her that her Dad just died.  He had been suffering from Nephritis (Kidney Disease) for some time, and was very weak but determined to walk her down the aisle at the wedding.

That was a terribly difficult time for everyone, especially all the Mizel family.  Mary Ann was very close to her Dad.  She and her Mom were just enough alike that they were sometimes at odds with one another.  While Mary Ann could never seem to please her Mom, she was the apple of her Dad’s eye.  It was hard for Mary Ann to deal with that so far away from the rest of the family.

Getting married was very good for my grades.  They shot up to what I had been accustomed to getting almost immediately.  I remember that the first summer we were married was very lonely.  Since there were almost no other married students staying in St. Louis for the summer, and we knew no one else.  We spent many a lonely Friday evening wishing we had friends to do things with.

That summer also included one of the best experiences we had in our years with each other. It turned out to be the honeymoon of our dreams.  More about that tomorrow.

Today began with an early walk again.  It is encouraging that I was able to actually appreciate the beauty of the cool morning, the clouds, the birds.  Each morning that I have walked, there have been some moments without pain, moments that at least suggest the possibility of some level of healing some time in the future.

I came back to do the usual morning chores, providing a bit of order to my day.  I ran to the bank for a moment, but otherwise worked on thank you notes.  It is a slow process, but satisfying.  It draws me into a sense of community and belonging as I think about the people in the stands who have been cheering us on especially during the last years of our journey together.

Eddie came, picked me up, and we headed to the Red Lobster for lunch.  Eddie lost his wife to Alzheimer’s many years ago.  He is now very happily married again to a favorite of Mary Ann and me, Carol.  Eddie has been helpful to me whenever we have talked.  He has questions that help me process what we have been through as I try to respond and make sense of it.  The common experience makes it far easier to trust and be open about what went on and how each of us dealt with it.

I returned to meet with a furnace installer to arrange for an upgrade to a high efficiency unit with a segback thermostat.  That will be installed about a month from now.  The afternoon and evening has again brought with it more of the painful moments.  I have chosen to try to keep from winding down into the deep sadness that has a steady presence in me.  It was a little difficult to keep the sadness at baywhen looking at pictures that helped me remember some of the details of the wedding.  That was so long ago.  Both Mary Ann and I have commented that we had the sensation that we were looking over our own shoulders watching ourselves go through the motions at the wedding.

For now, I hope to get to bed a little early and get to sleep.  The mornings are better and the evenings worse, so my goal is to shorten the evenings and lengthen the mornings.

If you want to write a comment about this or any of the posts on this blog, look to the column on the right side of this page, titled “Recent Posts,”  click on the name of a post and you will find a box at the end of that article in which you can write a comment.  Clicking on the title of the post you are reading will accomplish the same thing.  Comments are appreciated.

 

June 25, 2010

She Was Already Engaged!

Posted by PeterT under Meaningful Caregiving, Relationship Issues | Tags: , , , , , , |
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I didn’t know — honest!  I wondered why her Mother was crying in the portico at church one Sunday. She wasn’t wearing the ring.  When finally we talked about it, she said she wasn’t wearing the ring because she had decided to send it back to Allen, who, if I understood correctly, was in the military in another part of the country.

She also told me that before Allen, there had been Louie.  She was also engaged to him, for how long I don’t know.  If I got it straight, both of them were at least a couple of years older than she.  Joy, Terry and Cherri have the straight scoop on that.

I remember the first time we kissed.  We were riding (not parked) in the back seat of the car as four of us were headed somewhere, who cares where.  I don’t know how many times we had dated when that happened.  I just know it happened.  The earth didn’t shake, there was no thunder and lightning, no bells ringing, but darn near it.

I remember sitting upstairs in the old parsonage, where the Vicar (pastor in training on his internship at our parish) and a few of the guys were talking.  The subject of my having had a few dates with Mary Ann came up.  They assured me that I was not up to the task of taming that feisty lady.  They were right.  I just married her, I did not tame her.  By the way, I have no doubt the other guys in the group were hopelessly jealous of me.

I remember one time at Mary Ann’s house when a bunch of us were there, she said, “Where’s my Man?”  She was talking about me.  My heart jumped right up into my throat.  At that time in my life, the stature, big ears and pointed nose remained the same, but I had worked out regularly that first year of college.  I was 135 pounds of toned muscle, having done a record 17 back handed pullups during the physical fitness test we took.  I could bench press my weight.  I curled 90 pound weights regularly.  By the way, now that I have been lifting Mary Ann for so many years as her Caregiver, I am again 135 pounds of toned muscle, just wrapped in 30 pounds of fat.

As the letters I wrote to her confirm, I fell head over heals in love with her in short order.  I wrote her every night for the next three years, other than summers, when we were together.  During that time, Sunday afternoons were the worst, I missed her so.  The second and third years of dating were during my years at a pre-Seminary school in Ft. Wayne, Indiana.

In addition to the letters there were weekly phone calls.  In those years, long distance calls were very expensive, a luxury.  The phone calls were less than satisfying.  The letters were better.  Often when we called the conversations found us in different moods.  Mary Ann never liked talking on the phone.  She was not overly sentimental and I was hopelessly lonely and in love.

Weekends together came after much anticipation.  The pattern was, a couple of days to get re-acquainted and in tune with each other, and then it was time to say a painful goodbye.  One day, she surprised me by leaving for church in Aurora in the morning and arriving in Ft. Wayne four hours later for lunch.  I won’t forget that day.  Her parents were very displeased even though she was 22 or 23 years old at the time. She had not told them what she was doing.

Summers were great.  By that time my parents had moved to a house they built at what we called the farm, my Dad’s dream place in the country.  He used every penny he and Mom had saved to build a three bedroom house in the woods, with a creek running by.  Mary Ann lived in town.  We were twenty miles apart.  After a while I could practically drive that blacktop in my sleep.  In fact, many times, I would become alert again after I had made a treacherous S curve with no memory of doing so.  That 1958 Chevy Impala with a powerful V8 engine could fly.  It was my Dad’s car.  I still didn’t have a car of my own.

Yes, I stayed out very late and got in trouble with my Dad more than once.  We were just talking!  Again, let me be clear.  We played by the rules and waited until we were married.  She made sure of that.  I was a typical young guy with hormones raging (cover your ears, Lisa and Micah).  By the way, is this in the area of too much information? That is all I will say about that.

Mary Ann and I were never afraid to argue with one another.  Mary Ann was strong willed, and as much as I loved her, I was willing to express myself also when something seemed unacceptable to me.  Sometimes we wondered if we should stay together, but making up was such fun.  (Again, too much information.)  I wonder if our ability to argue during those years helped us learn how to survive together and love each other with a lasting love.  We didn’t put each other down.  We just got mad at each other and said so when we were.  We could do passive-aggressive pretty well too.

At the end of my Senior year in college at Ft. Wayne, I finally got a car.  It was a 1950 Chevy in mint condition with 43,000 miles on it.  I got it early in 1965.  I drove it over to St. Louis at the end of that school year, ostensibly to check out the Seminary campus.  When I was there I went to a little office on one of the upper stories in an old building in downtown St. Louis to a wholesale jeweler to who catered to Lutheran Seminary students.  I got a diamond that is of exceedingly high quality, almost a half caret (pretty special for a college kid trying to make it on his own) and beautiful.

I surprised her with it one evening at the beginning of that summer when we were together at my folks place.  As is now obvious, she said yes!

Enough for now.  Like it or not, the story will continue in the next post.

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